The Tyler’s Hope Center for Comprehensive Dystonia Care is pleased to introduce the first Dystonia Educational Day Center which will be held on Friday, November 13th. The program will run from 8:30am – 3:00pm and will include invited guest speakers from our interdisciplinary team including psychiatry, physical therapy, communication sciences, occupational therapy and neurology. The program is open to dystonia patients and a caregiver.
For more information, please contact Jennifer Reichwage at jenniferr@neurology.ufl.edu.
Allied Team Training for Parkinson’s Disease was hosted at the University of Florida Gainesville– Movement Disorders Center site (Sept 30-Oct 4). Teams came from all over the country to train in best practices in the interdisciplinary care of the Parkinson’s disease patient. UF took advantage of the hosting venue to get a ton of Shands, VA and UF therapists from all disciplines trained. The program has to date trained almost 1200 people worldwide and it is a signature program of the National Parkinson Foundation. Special thanks to Irene Malaty, Rachelle Stephen and Janet Romrell for coordinating all of the activities. Patients can take solace in knowing UF teams have twice attended this event, and we hope provide world class care for Parkinson’s disease (Ruth Hagestuen, Elaine Cohen, and Denise Beran from NPF are the contacts if anyone is interested in attending one of the trainings).
Driving is one of the biggest issues facing a Parkinson patient as their disease progresses. Our friends at Beth Israel Deaconess Medical Center in Boston put together a video for the National Parkinson Foundation about this struggle with advice for patients and caregivers. Watch it at the NPF website here.
At our center, Dr. Sherrilene Classen and her team can advise patients and caregivers on what to consider.
Answer: Because the UFMDC has one of the largest interdisciplinary teams
in the world dedicated to making sure your deep brain stimulation device
is placed correctly.
You will see a fellowship trained movement disorders neurologist, a
fellowship trained movement disorders neurosurgeon, and you will receive
the best possible medical optimization. Additionally, you will have access
to a complete interdisciplinary team of experts in every area (speech,
voice, walking, balance, memory, depression/anxiety disorders, rehabilitation,
driving, occupational therapy, etc.) who specialize in the care of Parkinson's
and Movement Disorder Patients.
We will ensure you are the right candidate,
and discuss with you in detail what symptoms we think you can expect
to improve with a deep brain stimulation surgical therapy. Your case
will be discussed in detail with the interdisciplinary team prior to
any surgical intervention. In addition we will provide a top-notch operating
room experience with a neurologist, microelectrode multiple pass mapping,
and careful imaging and guidance for the proper placement of your device.
After it is implanted you will have full access to a dedicated staff
for programming and followup of your medication and DBS needs. Should
you have any problems we are always available to help you.