In response to a critical need for care and research in this area our group decided in 2010 to pull together existing resources and to push forward toward a Center of Excellence for Progressive Supranuclear Palsy & Atypical Parkinsonian Disorders.
This interdisciplinary clinic is run as a partnership between the University of Florida’s College of Medicine’s Center for Movement Disorders and Neurorestoration (Dr. Nick McFarland) and the College of Health and Human Performance (Dr. Chris Hass). These two world-class doctors and scientists co-direct this initiative.
The identified needs in this area:
- There are few places in the world that offer the complete interdisciplinary care of the PSP/Atypical Parkinsonism Patient
- Better care in PSP/Atypical Parkinsonism will lead to better research and greater awareness of what is needed in the field
- Partnerships need to be developed in clinical and basic science research for PSP/Atypical Parkinsonism
- We need to work on a program that will attract high level scientists and clinicians from other fields to take on PSP/Atypical Parkinsonism issues as well as research/care challenges (there is a critical mass problem)
UF Center for Movement Disorders and Neurorestoration Interdisciplinary Approach to PSP and Atypical Parkinsonism:
We have created a model of excellence in care, research, and education for PSP atypical parkinsonism. To accomplish our goals we have constructed an interdisciplinary world-class, “concierge service” for every new and return patient seen at our center with PSP or an atypical parkinsonism. Patients will all be evaluated at each visit by an automated gait and balance machine which will help clinicians follow the disease and researchers unlock its secrets.
The patient and family will have access to all interdisciplinary services in one place (such as social services, physical therapy, psychotherapy, psychology, psychiatry, occupational therapy, prosthetics, palliative services, etc). They will be able to be scheduled for multiple services during the clinic visit, thus providing a true interdisciplinary care.
We have integrated the UF Center for Movement Disorders and Neurorestoration research infrastructure toward the potential for PSP and atypical Parkinsonism work. This new effort is directly partnered with the UF Center Translational Research in Neurodegenerative Diseases, and the clinical trials center. Our hope is to offer patients the best possible clinical and research experience.
The PSP and Atypical Parkinsonism program is also interested in developing a training program to train new scientists for the field.
*Support for this program is provided by the Wright/Falls/Simmons Professorship